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Not sure if many of you know about an organization I am a volunteer for called hugs and hope http://hugsandhope.org we send cards and gifts to kids with life threatening illnesses, anyway a 10 year old is trying to get 1000 hits on a site that is about a golf tournament to raise awareness about congential heart defects. If you can check out the link take a minute and do so
http://memorialclassic.homestead.com/
Honest it is not one of those urban legend things either.
Thanks,
Mrs.TENo legend or myth here. I found out I had a heart murmur my freshman year of high school. Was no big deal I was told. Well in March of 03′ I was diagnosed with endocarditis. All started with a tooth infection that turned into a blood infection. 3 open heart valve replacements, a 6 inch gortex tube, a pacemaker and all but my button 6 teeth pulled. Oh, and I turn 38 this week.
C’mon people click the on the link!
My daughter who is now 6 was born with a congenital heart defect called Transposition of the Great Vesicles and had her open heart switch correction surgery at 8 days old. She got to ride in a helicopter when she was a day old. The surgery she had done was invented after we were all born and many children died of this in the past. Before the surgery we almost lost her.. She still has a leaking aortic valve and a small aortic widening they label an anuerism.
She will be on a life-long medication and may need more surgery down the road but due to excellent medical breakthroughs and living near one of the best places to possibly be (Childrens in Milwaukee) she is alive and able to spread her cuteness on the world.
She hates geocaching, and that’s fine by me. She loves swimming and playing on the swingsets. This year we are going to let her try playing soccer. We value every day we have with her.
Every day should be congenital heart defect awareness day. It impacts so many and you aren’t even aware sometimes… Anything like this is worth it to spread the word!
-cheeto-
#0514
We have a Daughter with an Atrial Septum Defect. No treatment has been given yet but it has been closing all on its own but it is still a concern.
#536
We’re #539 🙂 .
543
543
#554
My son (TDSKid) was also born with a heart defect. I can’t remember the technical name for it anymore, but what it was, was an artery in the heart that was supposed to close during birth, could not close because instead of being 1-2mm it was nearly 3/4 of an inch in diameter.
He was taken by ambulance on his first day from Kenosha to Racine, where they were also clueless to his problems. (They couldn’t figure why his heart rate was near 200). Then he was flight for life’d to Children’s Hospital in Milwaukee. Dr. Berger took one listen to his heart with a stethoscope and knew exactly what the problem was. Alec had heart surgery that night to close the artery, and is now a very athletic child with no side affects! He spent 10 days in all in the hospital before he got his first meal. He had lost 35% of the weight he had at birth. Scary times, but a healthy child now!!!
#563
We know Dr. Berger as well. He repaired our sons ASD back in 2000. Evan was born 2# 10oz and spent 45 days at St. Joe’s NICU. He was transferred to Childrens for a liver biopsy and stayed there another 20 days. His ASD was small enough that they hoped it would close on its own. It didn’t, and at 2 1/2 years old, he had it repaired.
He’s always been small. 20th percentile for both height and weight. But that has never slowed him down. Last year he won the Cy Young award for his little league baseball team and this year he wanted to try out for tackle football. He made the team and has no trouble keeping up with his twin brother.
576.
#640, great cause!
#642 here I agree great cause
WOW you guys are great… the number is up to 693. I am also enjoying reading the personal stories. Amazing how many have been touched with such great medical burdens. Thanks.
TE
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